A conjugalidade de pais com filhos diagnosticados com paralisia cerebral: entre a afetividade e suporte social

Abstract

The discussion about the couple of couples who have children with Cerebral Palsy r epresents a great challenge and a harvest important for studies on the family directions, the affection became the nucleus around which its members gather and provide feedback your desire to be together. However, the intense, uninterrupted and permanent care inherent in the framework of cerebral palsy prints specifics to form. The present study aims to discuss the dynamics of conjugality in families with children diagnosed with CP, from the fact that the care of children with CP modifies the household routine, especially for mothers who want professional, personal life to devote himself to the treatment of their children. In the interim, the married life is in the background and the couple turns to the needs of your child. Three couples participated in the research met in a Clinical School of Feira de Santana -nBahia. The data collection instrument was a interview especially created for the study, which covered the following themes: family history and marriage, parenting, support network and careful , sexuality and prospects for the future. The criteria for inclusion of participants were: couples with children with Cerebral Palsy; participants of a social Assistance Program. The content produced by each couple were analyzed based on these thematic blocks, and the results were discussed with focus on conjugality of couples doing a comparative analysis of data obtained with the national and international literature. Despite the CP bring emotional overload for the family, especially for the mother, the couple's difficulties are not determined by stress that the care of the child with CP determines, but rather by their own everyday experiences.