Entradas e saídas pediátricas: famílias em contextos de reinternações hospitalares

Abstract

Chronic diseases in childhood have a very high prevalence with implications for the child's own development and also for their family relationship and socialization processes. Taking care of chronic children can be a very difficult experience – whether for members of the health framework, or for family members responsible for the ethics and economy of care. Among the family components, especially in situations of vulnerability and health - care, attention and assistance fall on women (mothers, grandmothers, aunts, etc.), registered in contemporary disciplinary and interdisciplinary academic productions, as they are the figures in which the changes in their role in the public and private milieu had the greatest impact. Thus, the objective was to understand the dynamics in family relationships of children who experience prolonged hospital readmissions due to diagnoses of chronic diseases from pregnancy and birth. The study intended for the master's degree was developed in the first half of 2021, with family members (accessible only to women-mothers who, even in a pandemic situation, accompanied and accepted to be part of the research) who experience frequent hospitalizations of children in the Pediatrics Complex of a Private Hospital of Salvador, Bahia. Seeking to analyze the proposed theme, this work was based on a descriptive, qualitative research, using a methodological procedure of applying a semi-structured questionnaire with the use of communication platforms to capture relational situations narrated by the caregivers, whichever they are (list the categories centrals). The rationale for the study is to promote a reflection on the role of the family (division of the ethics of care, development and functions within the context) in the evolutionary improvement in the health of children with chronic diseases and in the understanding of coping strategies - that is, , the ways that families have to deal with the problem-situation (disease), extension of treatment and reliability/living with multidisciplinary teams. The investigation proposes to resonate with the complexity of the changes that occurred in family life and enable the restructuring of the family structure. As a result, it is concluded that family rearrangements are loaded with physical, emotional and marital strain. Maternal care is sovereign intra- and extra-hospital, while parents occupy only a providing position. The support network is limited and the feeling of loneliness permeates the trajectory of the mothers.