Entradas e saídas pediátricas: famílias em contextos de reinternações hospitalares
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Date
2021-07-30
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Universidade Católica do Salvador
Abstract
Chronic diseases in childhood have a very high prevalence with implications for the
child's own development and also for their family relationship and socialization
processes. Taking care of chronic children can be a very difficult experience –
whether for members of the health framework, or for family members responsible for
the ethics and economy of care. Among the family components, especially in
situations of vulnerability and health - care, attention and assistance fall on women
(mothers, grandmothers, aunts, etc.), registered in contemporary disciplinary and
interdisciplinary academic productions, as they are the figures in which the changes
in their role in the public and private milieu had the greatest impact. Thus, the
objective was to understand the dynamics in family relationships of children who
experience prolonged hospital readmissions due to diagnoses of chronic diseases
from pregnancy and birth. The study intended for the master's degree was developed
in the first half of 2021, with family members (accessible only to women-mothers
who, even in a pandemic situation, accompanied and accepted to be part of the
research) who experience frequent hospitalizations of children in the Pediatrics
Complex of a Private Hospital of Salvador, Bahia. Seeking to analyze the proposed
theme, this work was based on a descriptive, qualitative research, using a
methodological procedure of applying a semi-structured questionnaire with the use of
communication platforms to capture relational situations narrated by the caregivers,
whichever they are (list the categories centrals). The rationale for the study is to
promote a reflection on the role of the family (division of the ethics of care,
development and functions within the context) in the evolutionary improvement in the
health of children with chronic diseases and in the understanding of coping strategies
- that is, , the ways that families have to deal with the problem-situation (disease),
extension of treatment and reliability/living with multidisciplinary teams. The
investigation proposes to resonate with the complexity of the changes that occurred
in family life and enable the restructuring of the family structure. As a result, it is
concluded that family rearrangements are loaded with physical, emotional and marital
strain. Maternal care is sovereign intra- and extra-hospital, while parents occupy only
a providing position. The support network is limited and the feeling of loneliness
permeates the trajectory of the mothers.
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Keywords
Criança, Doença crônica, Ética do cuidado, Rede de apoio, Família, Maternidade, Kids, Chronic diseases, Ethics of care, Support network, Families, Maternity